At age 27, they both died in Colombia with a few minutes difference while they were receiving care related to their mobility. The news provoked a strong reaction among those who had followed his story for years.
Beyond their status, the youth leave a story marked by union, perseverance and a relationship between brothers and sisters that literally accompanied them throughout their lives.
"Together from day one and together to the end."
The final medical cause of his death remains to be handled with care while all official results are known.